CARE
With the first objective of the SHARE study aiming to focus specifically on Indigenous experiences with HIV care and treatment, this focused sub-study of SHARE will examine the care experiences of Indigenous People Living With HIV (IPLWH) within British Columbia (BC).
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For CARE (the Community, Aboriginal, Relationships, Experience Study), semi-structured
Talking Circles with Indigenous People Living With HIV (IPLWH) has collected
IPLWH’s stories and experiences surrounding their HIV care. The project’s Indigenous
Research Coordinator, Indigenous Research Assistant and an Indigenous Peer Research Associate (IPRA), along with an Elder, guided the Talking Circles at a community venue within each health authority.
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The goal of this study is to identify the contextual obstacles and pathways to HIV treatment engagement and re-engagement among Indigenous Peoples living in BC. This study has three research objectives:
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- What are the stories of strength, survivance and success in regard to HIV treatment engagement and re-engagement?
- What are the pervasive obstacles in care experienced by Indigenous People living with HIV in BC?
- What are the most important qualities of care for Indigenous clients who may need additional support to start or re-engage in treatment?
STUDIES MENU
Project Update
Since launching the study, the CARE team has completed Talking Circles in Nanaimo (November 2025), Prince George (January 2026), Fraser Region (March 2026), Kelowna (May 2026) and the Downtown Eastside (July 2026). We are grateful to the participants and community partners who have helped guide this work and ensure these regions are meaningfully represented in the study.
Conference Note
The CARE team presented at the Canadian Association for HIV Research (CAHR) 2026 conference in spring 2026, sharing our work on the application of Talking Circles as an Indigenous methodology in HIV research. We had the opportunity to engage in meaningful conversations with researchers, community members, and partners, and appreciated the thoughtful discussions and connections that emerged from the conference.
Knowledge Translation
The CARE team is currently synthesizing findings across the health regions and developing regional summaries to support the knowledge translation and mobilization phase. We are also considering how findings can be meaningfully shared back with participants, community partners and other audiences
Knowledge Sharing and Mobilization funding
KÃlala Lelum Health and Wellness Cooperative was recently awarded a $20,000 Knowledge Sharing and Mobilization Grant through the BC NEIHR ICCO Funding Competition. This funding will support knowledge sharing and mobilization activities connected to the CARE Talking Circles and findings.
Talking Circle Locations
British Columbia
- Nanaimo - November 2025
- Prince George - January 2026
- Fraser Health Region – March 2026
- Downtown Eastside in Partnership with KÃlala Lelum Health Centre (July 2026)
- Kelowna – May 2026
Study Team
| Study Team: Dr. David Moore Research Scientist BC Centre for Excellence in HIV/AIDS Dr. Kate Salters Research Scientist BC Centre for Excellence in HIV/AIDS |
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| Study Staff: | |
| Nicole North Peigan - Research Assistant | |
| Claudette Cardinal - Peer Research Associate | Community Partners: |
| Dr. Chenoa Cassidy-Matthews | Dr. Maya Gislason |
| Dr. Robert Hogg | Dr. Dee Hoyano |
| Dr. Rakel Kling | Mr. Mathew Fleury |
| Ms. Kathy Lepik | Dr. Surita Parashar |
| Dr. Karin Goodison | Ms. Meaghan Thumath |
| Dr. Matthew Moher | Dr. Aamir Bharmal |
