CARE

With the first objective of the SHARE study aiming to focus specifically on Indigenous experiences with HIV care and treatment, this focused sub-study of SHARE will examine the care experiences of Indigenous People Living With HIV (IPLWH) within British Columbia (BC).

 

For CARE (the Community, Aboriginal, Relationships, Experience Study), semi-structured
Talking Circles with Indigenous People Living With HIV (IPLWH) has collected
IPLWH’s stories and experiences surrounding their HIV care. The project’s Indigenous
Research Coordinator, Indigenous Research Assistant and an Indigenous Peer Research Associate (IPRA), along with an Elder, guided the Talking Circles at a community venue within each health authority.

 

The goal of this study is to identify the contextual obstacles and pathways to HIV treatment engagement and re-engagement among Indigenous Peoples living in BC. This study has three research objectives:

 

  1. What are the stories of strength, survivance and success in regard to HIV treatment engagement and re-engagement?
  2. What are the pervasive obstacles in care experienced by Indigenous People living with HIV in BC?
  3. What are the most important qualities of care for Indigenous clients who may need additional support to start or re-engage in treatment?

Project Update

Since launching the study, the CARE team has completed Talking Circles in Nanaimo (November 2025), Prince George (January 2026), Fraser Region (March 2026), Kelowna (May 2026) and the Downtown Eastside (July 2026). We are grateful to the participants and community partners who have helped guide this work and ensure these regions are meaningfully represented in the study.

Conference Note

The CARE team presented at the Canadian Association for HIV Research (CAHR) 2026 conference in spring 2026, sharing our work on the application of Talking Circles as an Indigenous methodology in HIV research. We had the opportunity to engage in meaningful conversations with researchers, community members, and partners, and appreciated the thoughtful discussions and connections that emerged from the conference.

Knowledge Translation

The CARE team is currently synthesizing findings across the health regions and developing regional summaries to support the knowledge translation and mobilization phase. We are also considering how findings can be meaningfully shared back with participants, community partners and other audiences

Knowledge Sharing and Mobilization funding

Kílala Lelum Health and Wellness Cooperative was recently awarded a $20,000 Knowledge Sharing and Mobilization Grant through the BC NEIHR ICCO Funding Competition. This funding will support knowledge sharing and mobilization activities connected to the CARE Talking Circles and findings.

Talking Circle Locations

British Columbia

  • Nanaimo - November 2025
  • Prince George - January 2026
  • Fraser Health Region – March 2026
  • Downtown Eastside in Partnership with Kílala Lelum Health Centre (July 2026)
  • Kelowna – May 2026

Contact

For more information about the CARE Study, please email npeigan@bccfe.ca

Study Team

Study Team:
Dr. David Moore
Research Scientist
BC Centre for Excellence in HIV/AIDS

Dr. Kate Salters
Research Scientist
BC Centre for Excellence in HIV/AIDS

Study Staff:
Nicole North Peigan - Research Assistant
Claudette Cardinal - Peer Research Associate
Community Partners:
Dr. Chenoa Cassidy-Matthews Dr. Maya Gislason
Dr. Robert Hogg Dr. Dee Hoyano
Dr. Rakel Kling Mr. Mathew Fleury
Ms. Kathy Lepik Dr. Surita Parashar
Dr. Karin Goodison Ms. Meaghan Thumath
Dr. Matthew Moher Dr. Aamir Bharmal

Recruitment Materials

Study recruitment poster
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The BC-CfE Laboratory is streamlining reporting processes for certain tests in order to simplify distribution and record-keeping, and to ensure completeness of results. Beginning September 2, 2025, results for the ‘Resistance Analysis of HIV-1 Protease and Reverse Transcriptase’ (Protease-RT) and ‘HIV-1 Integrase Resistance Genotype’ tests will be combined into a single ‘HIV-1 Resistance Genotype Report’.
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